Hit a rough patch
Yesterday was a tough day. Little Miss Sophie had an impressive spit-up episode where she stopped breathing and turned red and was choking. It was scary and left me shaken up for the rest of the day. I was also tired, exhaustingly utterly tired. And then little miss Sophie had a series of poopy diapers that didn't look quite normal. The nurse kept checking in with the doctors and finally they decided that a series of blood tests and an x-ray of Sophie's tummy were necessary. The results of the blood test said that she doesn't have an infection or bacteria, but they want do the labs again later tonight to make sure nothing has been incubating in her system. The x-ray also doesn't conclusively show that everything is normal with her intestines. So, they are erring on the conservative side and Sophie is on an IV again. No feeding for 48 hrs. More x-rays and blood tests along the way to chart her progress. If everything is okay, then they will suspect that it is some sort of allergic reaction, possibly to the fortifiers they add to the breast milk. So -- we shall see.
I feel like I've been trying so hard in being here, to do the right thing, to pump and breastfeed and practice and hold them when I can. It's devastatingly hard to have things not go well.
The flip side of this all is that Theo is doing like a rockstar. Yesterday he did breastfeeding pretty well AND he took feedings from a bottle really really well. Our little man gets hungry before his feeding times (a good sign) and he's learned lots of skills just in the past day. It looks more and more like Theo might get to come home before his sister will.
**Monday night update:
After reviewing the x-rays and blood work, there was no conclusive decision from the doctors. The good part is that there was no conclusive *bad* news. The director of the department is in charge of Sophie's case now and he's known to be extremely conservative. So, they plan to do another x-ray tomorrow morning and perhaps we'll hear. Apparently there's a horrible infection that premature babies can get that causes necrotic wasting of the intestines. If Sophie had that illness, it would be extremely bad to start feeding her before it clears up. Fortunately is doesn't seem like she has that particular diagnosis, but they want to be very very cautious.
Sophie has been understandably a bit cranky and vocal about her discomfort. The nurses all call it "appropriate" responsiveness. We all know already that Sophie will not be shy about telling us when she's unhappy. All day today Laurent and I took turns holding her, and in our arms she would sleep peacefully. She deserved all the cuddling and love today.
I feel like I've been trying so hard in being here, to do the right thing, to pump and breastfeed and practice and hold them when I can. It's devastatingly hard to have things not go well.
The flip side of this all is that Theo is doing like a rockstar. Yesterday he did breastfeeding pretty well AND he took feedings from a bottle really really well. Our little man gets hungry before his feeding times (a good sign) and he's learned lots of skills just in the past day. It looks more and more like Theo might get to come home before his sister will.
**Monday night update:
After reviewing the x-rays and blood work, there was no conclusive decision from the doctors. The good part is that there was no conclusive *bad* news. The director of the department is in charge of Sophie's case now and he's known to be extremely conservative. So, they plan to do another x-ray tomorrow morning and perhaps we'll hear. Apparently there's a horrible infection that premature babies can get that causes necrotic wasting of the intestines. If Sophie had that illness, it would be extremely bad to start feeding her before it clears up. Fortunately is doesn't seem like she has that particular diagnosis, but they want to be very very cautious.
Sophie has been understandably a bit cranky and vocal about her discomfort. The nurses all call it "appropriate" responsiveness. We all know already that Sophie will not be shy about telling us when she's unhappy. All day today Laurent and I took turns holding her, and in our arms she would sleep peacefully. She deserved all the cuddling and love today.
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Cute hat, right? These are made and donated by people for the NICU. |
These sweet little signs were made by one of the NICU nurses, they were posted up on the wall when we arrived the first day. |
Alors là tout en anglais, vous progressez les amis et nous aussi du coup, enfin on essaie. J'aime bien mais je ne suis pas certain que tout le monde soit de mon avis ;-)
RépondreSupprimerCela dit, c'est cool qu'on ait aussi les échos de la maman.
Je ne suis pas certains d'avoir saisi toutes les subtilités, mais ça semblait un peu chaud pour la demoiselle. On espère qu'il n'y a rien de grave et que les médecins vont pouvoir diagnostiquer ce qu'il en est.
Ah les additifs !!!
hey hey hey! On a recu les Tic et Tac aujourdhui. :) Les photos vont arriver bientot.
Supprimeroh !!!!!j arrive pas a traduire !!!!!!comprends que quelques mots !!!!!!!!!!!!!!!!!!!!!!!
RépondreSupprimerj ai juste compris qu il y ya un soucis avec la miss ,vite qu il trouve ce qu il se passe ,ils ont 3 semaines aujourd hui
Desole, Maman. On verra pour Sophie, mais on espere c'est pas de tout avec elle. Je peut essaie traduire, mais j'ai seulement un moitie d'un cerveux ces journees...
SupprimerMan, what a hard thing to go through! I hope you're feeling a little better today and that nothing major is wrong with Sophie. It is SO hard when babies get sick and can't tell you what's wrong. ESPECIALLY when you're tired! It will gradually get easier---just all of a sudden, you'll be like, hey, today was a little easier than yesterday, and it'll happen more and more often. You look GREAT nursing Theo--a natural!
RépondreSupprimerWe love you!
Carrie :)
Thanks Carrie. Today *was* a little bit better. :)
SupprimerHang in there. Sounds like you've got a great team in the NICU, and I'm sure the little ones really benefit from all the time the two of you are giving them. More oatmeal and seaweed for mom!
RépondreSupprimer-Amos
I like that Sophie is vocal in her objections--"appropriate" indeed! She's going to be a firecracker!
RépondreSupprimerHang in there! Hoping that by "conservative" you mean that the doctor is hesitant to take invasive or radical action. Be patient and calm and your babies will persevere.
RépondreSupprimerBen alors Sophie est grande pour faire l'entérocolite!!!! J'espère que ça va aller mieux. Si c'est pris rapidement en charge ce n'est pas grave. Les régurgitations étaient vertes?
RépondreSupprimerCourage
Plein de bisous pour tous les 4
Non, les regurgitations n'etaient pas vertes. Et elle ne passe pas a nouvelle les couches avec sang. Aujourdhui elle a mange pour le premier fois depuis Samedi soir! Et du biberon. Bravo! C'etait juste un peu, mais quand meme, elle a sourire apres.
SupprimerOn te lit avec l'accent c'est trop marrant. J'adore.
RépondreSupprimer